Monday, November 16, 2009

Child's Play!

Good news!
blog a wonder_woman
We had our first girl-power mixer for the RubyFeather Social Club last night and it was AWESOME. I never met so many  women who I would totally love to be friends with. It was wonderful to hear the stories of others and share strengths and support. I believe that everyone left energized and hopeful, really feeling this if they had sisters on the journey toward motherhood.


In addition to that I can proudly say I DID IT!  I gave myself the menopur shot this morning. Yes, I was still sweating and a little nervous, but I played some Joss Stone tunes and did a little power dance before I plunged the needle in my belly. Hooyah! I can't believe it, but I felt EMPOWERED! I had control over something for once. I think I am going to take the syringe away from my husband, and do it myself more often.


On a funny note, the Bear left me the HCG needle instead of my teenie 30 gauge one. I was mixing the solution and getting ready to add the needle when I thought- Cruel joke! What was he trying to do? Kill me???? Once I found an appropriate sharp (a wee dwarf of the HCG needle,) it seemed like child's play.


A big thank you and cyber hug to everyone who has left me a comment. IT'S HELPING!!!!!
Go ladies go! Let's make some cute babies around here!

Sunday, November 15, 2009

Sleepy Hollow


I have so much to do today, but I need to “get this out”. I am not sure what words or patterns will form here, but I need to open the padlock to my hope chest and set a few butterflies free.
I tried to call my RE to postpone this IVF cycle. With the passing of my Uncle and the stresses at home and work, I just felt like it was all too much right now. I went over timing with the nurse and it’s pretty impossible to just push it out a month because their lab closes for the holidays and they have cutoff dates in November. If we wait until January we have to get approved again from our insurance, and our deductible will be HUGE.
blog woman_cryingMy body and mind need TIME, but there is now way to barter for time right now.
So we began the basline tests yesterday. I went to the Ultrasound lab at Brigham and Women’s Hospital in Boston and tried to send a little good energy to the ladies who sat near me in the waiting room. I need to reach out with a smile and a whisper of “good luck” to my sisters on this journey, because I know how desperately I flourish under the support and kindness of others.
We started the Gonal F last night and now do menopur in the am. That sh!# burns! Tomorrow I may have to give myself the injection (and it scares me). Me, in my seemingly professional power-suit, sweating and shaking over the kitchen sink with a needle in my belly. The image makes me want to cry…
Breathe, kiddo. That’s about all you can do right now.
Gosh, I could use a hug (or a valium : ) )!

Tuesday, November 3, 2009

A View from the Ceiling

Still in Florida. My Uncle is still in a coma. Yesterday, the Doctor in the ICU described his condition as a "catastrophe". He said Uncle might remain in a "vegetative state" and that he had bleeding on both sides of his brain. He said we had to be prepared, and that they were doing more CAT scans to confirm their assumptions. If we took him off of the ventilator he would not breathe on his own. If we waited, and the tests confirmed there was no brain function, we could keep him alive, attached to machines and feeding tubes for the rest of his existence. "Or".....I dare not go in to the or as it is a decision I hope no one in the world ever has to make. At least the "Or " would provide an end to his suffering. That long elusive word, "dignity" hung around his neck like  an invisible rosary.
There were more than a few moments when I felt as if I had left my body and was floating above the conversation, hearing everything through a muffled blankets.

I spent half the day floating around the ceiling. I stroked his hair and caressed his arm while I told him stories of my baby niece and my new husband. My dad was grieving in a silent, tormented way. He was telling his brother to wake up or he would sell his new television.


We met with his social worker to understand (and help translate) all that we heard. I was supposed to be in charge of the meeting so my dad could breathe and absorb it all, but I couldn't hold back my emotions. My Uncle'scase worker told us that if he did not improve, we should decide if my Uncle would wish to stay on life support or pass on. She said no one would rush us to make that decision. Then she told us about a thing called Hospice.


It was difficult to sleep last night. Dad and I tried to take joy in simple things- We spotted a pair of iguanas in an empty lot by the beach. We ate an abundance of Jewish pastries. It brought the term " carbo loading" to a whole new level.

We went back to the hotel to extend our lodging and push out our flights. I spent a few hours trying to get my husband a ticket to join us. I have been married a year and it is still hard for me to accept support from those that love me. The Bear will be a welcome addition to ourcoterie in the coma ward. He is steady and loving, and he's studying medicine (a plus in this case). He has a certain distance to the situation, and hisunwavering care and concern will help steady me through this.


On the computer in the hotel room, struggling for a signal. Then it's "ooooooooh, ooooh, eeeeeeeewwwwwwoooohhh" through the walls as a couple started to bump de bump for what seemed like HOURS. Mind you, I am sharing a hotel room with MY FATHER and this woman is SCRRRRREEEEAMING at the top of her lungs.

Talk about awkward.


I wanted to bang on the wall and say "Get a ROOM!" But isn't that what they did???? Could I blame them?


Impossible to sleep. Worry kept me awake. And then the 2am redoubt of the opera of moaning next door. It sounded like they were killing chickens in there! Dad snoring, lady coming and all I could think of was GET ME OUTTA HERE!!!!!!

But the sun comes out in sunny florida and today was a different story. Yes, they were still at it at 6am, but we left quickly for more carbo loading and a trip to the ICU. Uncle's new CAT scan revealed that his brain was doing better than expected, but he was experiencing seizures every time they tried to pull him out of his coma. The Doctor said there was a glimmer of hope. I asked her what she recommended and she said, let's give him time. "Time is all we have right now," I replied.

Let's give him some time.

This is one of the most important times of my life. This is something that changes you and once you pass that doorway and experience something like this, you cannot go back.

It just makes me realize how precious family is. I hope my Uncle knows how much I love him.

That's enough for tonight....
Sweet dreams and love to you, dear reader. Thank you for listening.

Saturday, October 31, 2009

Dear Uncle


I write this from a hotel lobby in sun-bruised Hollywood, F L A. I’m visiting my Uncle who had a terrible stroke. When I say those words, “Uncle in a coma” I always feel like it’s just some weird and horrible joke told by an old Jew with a cigar… The  famous “Uncle in a coma” joke second only to “Who’s on First”. It just seems too awful to be true.
It’s so horrible it can ONLY be a joke. It’s so visceral and raw. I’ve never loved my father more, or been so exhausted.
Every time they try to take him out of his coma he has a seizure. His brain is still very active from the stroke. I want him to have dignity. DIGNITY!!!!!! I was happy today when they brought him a special bed in the ICU.
I brush his hair and tell him how sorry I was for being LATE. How I am here NOW and he will never be without FAMILY again.
Call your mother. Tell someone you love what they mean to you today. REALLY.
And if you are reading this, say a little prayer for Eugene. And for every hurting, lonely soul who needs a bit of kindness. Moments like this make me realize how lucky and blessed I have been. I wish I could give him some of this blessing…
Thank you for reading this…
Shell

Wednesday, October 28, 2009

RubyFeather is now on Facebook




So many ladies have written to say that they love the idea of our new girl-power group for those of us navigating the big IF. I have to say that it is so wonderful to get such an outpouring of support.
We have set up a facebook page so folks interested in Rubyfeather and what it represents can connect and support one another. This page is global, so you don’t have to live in Boston to become a member.
Also, by joining this page or becoming a “fan” you can help us spread the word about RubyFeather. I tried to keep the main premise of the group somewhat discreet in description.
Won’t you be my facebook friend?

Tuesday, October 27, 2009

The Man Who Came to Dinner



Why is my manicure  DRY ENOUGH to type a new post, but not dry enough to post some bills????? Hmmmmmm....
Funny that you have time to do the things you long to do (if available to you) but never enough time to do the things you distaste?


I go back to work tomorrow. I took a few days off to be with my parents. They were visiting from California. Big Brooklyn Jews, with the striking accents and the dramatic hand gestures. My Mother, so warm and funny, seemed to be loved by strangers wherever she'd go...


My dad is still in Florida. His Brother is in a coma and has just had a stroke. They found him on the floor of his apartment. I worry about my Uncle, and about my Father, who was orphaned at 30. HisFather died of a stroke so I imagine this weighs very heavily on him. 


My Uncle is one of those difficult, eccentric men that you WANT to love because he is your "family". He has eyes like my father, and because of this, I tried desperately to love him. Still, he often said or did things that were hurtful or cut deeply, and he was sometimes cruel toward my Mother. My Mother who every stranger in the world seems to love.


I remember he once asked me if I was a lesbian, because I was still single at 29. This, he said, as he took his sticky dentures out and placed them face up on my kitchen table, so he could enjoy a slice of cheesy Brooklyn pizza. There's nothing wrong with being a lesbian, had that been my choice, but to be accosted with insinuation by a hairy, toothless man in my single-girl kitchen was just too much!


I want to love him. And part of me does bacause he is my Grandmother's son, and I know she is my guardian angel. I guess we make some interesting, celestial love triangle. The Grandma I never knew, my Uncle, and me....


It's complicated....


I was single (by choice) for so long, and I remember that universal fear. Something happens, you slip or are hurt, and because you live alone you think you might not be found for days. And g-d forbid if you have pets! Hungry pets, I won't go into the details...


I love my Uncle because I know he meant well (most of the time). He just did not know how to "say" it like everyone else. It was as if a streaky window separated him from my family. He was always on the outside of the window. And it was stormy out there...


I am closer by blood to my Uncle than my own husband. My husband who becomes more my soul mate every day. My Uncle, found on the floor of his apartment after suffering a stroke. My Uncle, still in a coma, having a seizure every time they try to pull him out of it. My Uncle, who loved me, paralyzed on his left side.


Why do I feel so angry?

Saturday, October 24, 2009

pork & (In)perfection




I’ve been thinking about this social club we have just started, and I am so excited by the positive response we have had thus far. We are less than two weeks old and have 20 new members in Massachusetts and Maine. I’ve gotten so many wonderful notes from readers who would love to join, but live too far. I wish we could do happy hours via skype so every woman who needed a network, could find herself in our big Boston Bear-Hug.
I first began this blog to break out of the bubble of isolation that this journey toward family can often create. You are either on the “inside” of the experience, or on the “outside”. As much as your friends and family love you, they are watching through a streaky window. What would it be like to be on the “inside” ….with sisters? The idea inspired me to form RubyFeather Social Club
I hope the group generates a lot of good energy, catharsis, and empowerment. It is so easy to lose your center on this journey. Maybe a few vagina jokes and some mocktails with the girls in RubyFeather  will help to brighten up this place!
And speaking of “not funny” moments (having little or nothing to do with my vagina) let me tell you about our domestic train wreck yesterday….
The Bear and I have been married a year. Last night was to mark the first dinner we have hosted at our house for both his parents and mine. I love my in-laws AND I love my parents, but the night was like a train that CRASHED, DE-RAILED, then got itself back on course and somehow arrived AHEAD OF TIME!
(Forgive me , if anyone in my family reads this. But blogging IS my therapy!)
Friday night, T minus 4 hours….My dad got a phone call at 2pm from a hospital in Florida. He had been trying to find his brother, whose phone was busy for several days. A man called to say he found my uncle passed out on the floor of his apartment a few days ago. He was now in intensive care and had not resumed conciousness. My parents are visiting Boston from California, and we immediately began making plans for my dad  to fly to florida, to be at my uncle’s bedside.
T minus 2 hours….My mother in law arrived two hours early . She had been trying to reach her son (my husband), who was swept away in the hubub of our family drama, and had missed her calls. I was still trying to arrange a flight and car for my dad and I hadn’t had a moment to dress pretty or finish setting up the house. (Obviously our priorities had changed). This day was a BIG DEAL to me. We’ve been planning it for weeks and I even bought our “married” silverware in preparation for the perfect table. This seemed so superfluous now.
Anyway, my head and heart were with my uncle, but the night was still moving forward. I hate not being prepared and I am a terrible stress ball (…control freak?) when things get derailed. (People who know me are probably smiling at this remark) The Bear was beyond grumpy,the appetizers still in plastic wrap, and I felt like someone who was caught in musky old clothes after a hapless walk of shame.
So train WRECK….then a slight DE-RAIL. When you are on this infertility journey, keeping face during special times can often seem like a dauntless task and a secret obsession. Once I realized that I needed to LET GO of the need to be appear perfect the night seemed to improve. Still it was not easy to give up this obsession!!!!! I lit a few candles and the floor didn’t seem as dirty (and neither did my hair : ) ). I had a few glasses of wine and “pouf”, BACK ON TRACK!
Somewhere between the stuffed mushrooms and the pork loin I was able to sneak away and get my dad a ticket to florida. My dear friend helped us out with a buddy pass on Jet Blue. (FLY JET BLUE!!!!!). I resumed my spot in the group and dad was relieved. Mom and M-I-L had rosy cheeks from a bit of wine and  girl-talk.
TAKE OFF. The Bear made a pork loin that was out of this world. Jews and pork- not always a good mix, but it was absolutely perfect!
T PLUS 2 HOURS- The pork was consumed, the apple cobbler devoured and my father in law was turning my parents on to another shot of lemoncello.
The night ended well. Daddy left on a 7am flight for Florida today. He says Uncle had a stroke and his condition is critical. I will keep them both in my prayers. The night made me realize that family is the most important thing… Nothing is ever perfect. But we need to cherish those moments that tug at our hearts. I am blessed to have so much love in this house….In 10 years, I’ll remember my mother’s bright eyes and tender heart last night, not my smelly pits or messy kitchen. That’s what I’ll take away from this….
Wishing you joyful moments of imperfection…